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Name E-Mail Age Gender Describe Yourself
Debbie sister@nwinfo.net 52 Female Diagnosed in Nov. of 2000. Love to talk to others about MS or anything else. Married, 3 kids, and 3 granddaughters. Live in Washington state.
Debby W. wilson9174@cs.com 40 Female I live in Texas, was diagnosed with relapsing remitting MS in June 2001, married, four children - boy 23, girl 21, boy 20, girl 9 (not a typo!) I am employed in the internal audit department of a large firm. I love the beach, really any water, and I love people!
Paul B. pburgio@softcom.net 46 Male For about the past 2 months I've been experiencing on & off fatigue, trouble focusing (which I was attributing to getting used to bi-focals), an almost imperceptible vibration in my right leg and arm, facial symptoms such as a feeling that my lips are shaking, ringing in my left ear. Could I have MS?
Michelle daisyduke10971@aol.com 34 Female Married with 6 kids(5 living) Live in Florida and am in the process of being diagnosed with MS.
Donna E. donna.elms@ntlworld.com 25 Female I was diagnosed at the age off 22 in September of 1998. I'm married with a three-year old little boy, and I am currently on Betaseron and live in the UK. I would be interested to hear from anyone to share thoughts/experiences.
Marie G. mlg01@edgardner.com 44 Female I'm 44, divorced but have that special someone in my life that gives me a lot of support. I work full time as a securities broker in Central Florida. I was diagnosed in January 2001, and on Avonex injections and doing great.
Sheryl sdavidson@accglobal.net 41 Female On Rebif for 3 1/2 months. I was diagnosed with MS for 10 years and have Relapsing Remitting MS. I would like to chat with someone to share personal experiences with this drug. I am having a difficult time adjusting and would appreciate hearing from others who can relate.
Bobbie starbright_ms@webtv.net 33 Female I'm 33 and found out that I had MS a little over a year ago. I'm confined to a wheelchair. I like reading and writing poery, sharing my story and the affects this has on myself and my family.
Roberta mscrt17@icqmail.com 33 Female I am from canada and enjoy the summers and outdoors. My kids keep me fairly busy and keep me going. I was diagnosed with MS about 10 years ago, and my sister was diagnosed with it as well about 3 years ago
Penny pnnmcall@yahoo.com 40 Female I'm married with two kids and work in a deli. I use to play sports, but it's a little hard now. I love family and friends and enjoy a good movie and music.
Sharon Sharons_way_web@hotmail.com 35 Female I was formally diagnosed with MS a couple of years ago, but I have been living with the disease for a much longer time. It has taken me a long time to come to terms with this illness, and I got through it by writing a novel about my struggles.
Carol P. korrisgirl@webtv.net 51 Female I was diagnosed in 1983 and now have Secondary Progressive MS. I spend my time in a lift chair or my wheelchair. I love the internet and the sources that go along with it. I enjoy communicating with other persons with MS.
Linda C. lj_coveney@hotmail.com 39 Female I was diagnosed in 1991. Happily married for ten years. I have 19 year old son (from previous marriage). Would like to communicate with anyone about anything as well as MS & it's symptoms.
Mary Beth D. tdickinson@voyager.net 42 Female I'm married and have two girls. I'm a good listener, have a good sense of humor, and am a Christian. I was diagnosed with MS 8 yrs. ago.
Ron D. roncmch@yahoo.com 41 Male I am a former healthcare professional who has adjusted to life with progressive MS. I am a divorced, with a nine year old daughter. I do a light workout three days a week and swim one of the other days. I am disabled due to leg weakness and right arm weakness. I am just happy to be alive and to be able to see my daughter grow up. If there are any other men out there like me, please write and maybe we can become friends.
Harriet R. kg4gsv@yahoo.com 55 Female I live in North Carolina and have had multiple sclerosis since I was 16. I have been using Avonex, and it seems to be working.
Laurie O. laurieorr@msn.com 40 Female I am a 45 year old woman suffering more than words can explain with MS. I am in pain most of the time, depression has truly set in and am not sure how to shake it anymore. I sure could use an internet support friend.
Kathleen D. lladehawk@yahoo.com 50 Female I am an Accountant by profession - artist and writer by nature. Not as yet diagnosed but having symptoms for six months. In need of a support group desparately. Also, gardener, animal lover, nature lover.
Barry S. lb2intx@aol.com 54 Male I was diagnosed 4 years ago. I am on Betaseron which seems to be working well. I have problems with my balance and spasticity on my left side. I was very active before MS, and there are a lot of things I'm not able to do anymore, which I think is the hardest thing to deal with.
Clevester C. ccjr1948@cs.com 52 Male I have a variety of interests and am now very involved in community activities. I was diagnosed with MS June 2000 so I am really learning about the disease and how to develop a management plan. I have Relapsing Remitting MS and am somewhat active. Love to surf the net.
Alexis A. Sxylexi22@yahoo.com 25 Female I live in Wisconsin and work in the medical field. I am divorced with no children. I have Relapsing Remitting MS.
Mitch K. mkoppel2@attbi.com 32 Male I am a married father of one small child. I have had Relapsing Remitting MS for about 10 years and am in pretty good shape with only a few minor problems. I live in the Chicago area and would love meet another males in similar situations.
Shelda L. shelda26@yahoo.com 45 Female I was diagnosed on Dec. 27, 2001. I live in Texas and have two sons: ages 25 and 21 and a step daughter, 19. I would love for anyone to mail me, to share the anger, the fear of the future, and sharing a sense of humor about MS.
Mike rippingredneck@hotmail.com 24 Male I was diagnosed with MS at age 19 after having several symptoms. I am taking a natural approach to cure the disease.
Lisa M. lmorrison@ullicolaw.com 28 Female I'm a very hardworking, determined person. I have had MS for about three years. I haven't let it stop me, but it certainly hasn't made things easier for me. I look forward to meeting new people and making friends.
Lisa princess1234@healthyplace.com 28 Female I have MS....and am a lively, hopeful, mother of 7 year old girl. Looking for support and to give support to others.
Sharon P. vlaphor@hotmail.com 50 Female I am now retired on disabilty. I was diagnosed in 1981 with Relapsing Remitting MS and now may be going into Secondary Progressive MS. I have been divorced for 15 years and have an 18 year old son.
Nanette nmderry@buffalo.edu 38 Female I am in the process of being diagnosed with MS. I have had symptoms for about three months but looking back, it might be a little longer. I live in Buffalo, NY with my husband, son, and two stepsons. I work at a university full time and enjoy the outdoors (when its not snowing) and gardening.
Cassie S. cmton80@aol.com 37 Female I'm married with four children ages: 19, 17, 13, 3 and one Grandson. I was recently diagnosed with MS on January 3, 2002.
Mel R. melwan378@aol.com 35 Male I'm 35 years old with secondary progressive MS. I live in Florida and am married with three wonderful children. I was diagnosed on October 29, 1999 and disabled. I'm looking to find a friend that understands the pain and the misunderstandings of MS. Not everyone knows how we feel and it's hard to explain. I like to share and listen.
Lorrie M. lorriemartin@37.com 39 Female I live in Virginia and have two children: ages 18 and 21. I have had health problems for many years, and it wasn't until October 2001 that I finally found my doctor to support MS. I feel as though I am progressing daily. I guess this is normal...as of now I have forgotten what normal was.
Beth catzbkb2001@yahoo.com 49 Female I am newly diagnosed with Progressive MS. I live in Texas and am a college student. I Would love to talk to people disabled.
Luis (Avi) lmn2gki@aol.com 60 Male I was diagnosed in 1973 with Probable MS, in 1976 with definite MS (after a big exacerbation), and in 1991 with Chronic Progressive MS. I use a power wheelchair for any distance over 20. I have poor coordination in my hands, and the use of my left arm/hand is impaired. I am a Mathematician. I worked as a teacher at Brooklyn Tech. High School as well as taught courses at Columbia University. I retired in 1992 after many falls and after placing my safety in peril. I live in Hoboken, NJ.
Rebecca beansale8898@aol.com 25 Female I am married and have two beautiful daughters; ages, 7 and 1. I was diagnosed with MS in May of 1998. I would love to talk with other people who have MS and have some of the same things happening.
Vanessa vewebster@yahoo.com 46 Female I have had MS for six years and am dealing with a difficult time. My son recently past away.
Nancy R. Nancy.X.Ryan@kp.org 49 Female Diagnosed with Relapsing Remitting MS in January 2002. I began Betaseron in March 2002, and since then many side effects are beginning to subside.
Leslie H. madlink9@aol.com 34 Female Diagnosed in 1997. I am married with two children: girl and boy - ages 4 and 5 months. Would like very much to talk with other people with MS, especially mild MS with the struggle of fatigue and cognitive function. I'm a stay at home mom. Contemplating copaxone.
Kendra kbrunt@shaw.ca 41 Female I was diagnosed with Relapsing Remitting MS in March of 1999. I started Rebif September of 2001, and am doing well.
Shelly sjenson@kimballinc.com 46 Female I was diagnosed on October 9, 2001. I work in the accounting department of a local company and really enjoy my job and hope to continue working for many more years. I would like to correspond with someone who has been living and working with this for a number of years.
Carole M. mouallem@worldnet.att.net 37 Female I'm waiting to be diagnosed. I think that I have had MS for at least five years but was originally diagnosed with Fibromyalgia. I have been experiencing visual symptoms and numbness in both arms all the way down for about five months. I am Mom to one son: age 6. Could use some friendly support because this is really scary.
Tamara I. nammy37@earthlink.net 40 Female I have been married for 18 years to a great guy. I have 3 wonderful girls: 2 are mine one is adopted, and I have 2 grandchildren. I was diagnosed in July of 2000. I am on Copaxone and doing well.
Mark B. beaued@hotmail.com 45 Male I'm married and have three teenagers. I am employed at a publishing company. I was diagnosed in 1993 and have Secondary Progressive MS. I live in a small Wisconsin town and enjoy fishiing and playing bass (when MS allows).
Melanie S. mschild7@comcast.net 45 Female I was diagnosed in 1988, and I have been on disability since 1998. I am married to a wonderful man and would love to talk with others living with MS.
Jade G. jade.n.grimaldi@au.andersen.com 27 Female I am friendly and considerate to others and would like to chat with others living with MS.
Shannon B. chatterbug2@hotmail.com 21 Female Diagnosed with MS since May 2000 and would like some friendly support as well as offer support to others.
Helen M. Therese81@aol.com 52 Female I am married with two wonderful kids - a daughter 24 and son 20, both on their own. I was diagnosed with MS December of 2001, but I feel I actually had it in 1991 when I graduated from nursing school. I was diagnosed with Chronic Fatigue Immune Deficiency Syndrome at that time. I have had several other major health problems, but this is the most scarey. I would love to talk to others with MS.
Lesa C. teceec@bellsouth.net 33 Female I am a happily married woman with three children. I have been living with MS for 10 years. I struggle with extreme mood swings and depression. I would very much like to talk with others living with MS.
Sandy sandyyvonne@hotmail.com 54 Female I am from England, and I have just been diagnosed with MS in January 2002. I have 3 kids and 4 grandchildren. I want someone to talk to, identify with, share views with, but most of all, I want friends that understand me.
Lisa ascolilisa@aol.com 38 Female I was diagnosed with MS in June 2000. I am an extremely positive person who doesn't let MS take control of my life. I believe in living each day like I do not have MS, even though I am highly educated in MS and constantly keep myself abreast of all information both new and old. This isn't denial: it's called living with MS and living a normal life.
Sally M., sallymeyer@aol.com 59 Female I have had Relapsing Remitting MS for years but diagnosed in February 2000. I mostly have vision and Trigemial Neuralgia problems. I continue to work full time and enjoy gardening, reading, computers, and hiking.
Lisa L. lisa7428@yahoo.com 44 Female I have Remitting Relapsing MS -- diagnosed in 1995.
Cindy R. cindin@centurytel.net 31 Female I am married with two children - ages: 5 and 8. I have been having symptoms for over a year. I will be starting Avonex shortly.
Janis B. purpledaisy_jb@yahoo.com 47 Female I was diagnosed with MS in 1992. I have Relapsing Remitting MS and have been on Avonex for the past 2.5 years and have found that it has really helped to control my MS.
Cara clgregg@msn.com 34 Female I am a Christian, single mother of 2. I am addictied to the computer and find myself on line at all times of the day and night.
Steve C. Laweis27@aol.com 30 Male I have been using Novantrone for and Copaxone for a year with steady results.
Deborah B. wolfgangb@shaw.ca 50 Female I am looking for others with MS or other disabilies to chat with. It would be nice to converse with friends who understand some of the struggles involved with illness.
Debbie K. D-A-Kenne@yahoo.com 41 Female I was diagnosed with Relapsing Remitting MS in January 2002. I am taking Copaxone and find it very hard to deal with the pain and welt-like marks from the injections.
Jim M. jtm3438@msn.com 37 Male I am 37 years old - diagnosed with Primary Progressive MS in December 2001. I'm married and have 4 children. My main symptoms are fatigue and balance problems. I live and work in New York.
Gabbi embrey@creative-net.net 53 Female I have Chronic Progressive MS and am currently on Betaseron & Novantrone. I'm married with two children and two grandchildren and live in Kenntucky.
Denise D. Dneecy35@aol.com 36 Female I am a divorced, single parent of a 13 year old son. I have a full-time job as a unit secretary in a hospital and attend college part-time. I was diagnosed with Relapsing Remitting MS two years ago and have been taking Avonex for almost two years. I am a very positive person.
Kathryn H. klhoop@aol.com 55 Female I am newly diagnosed and have been dealing with post polio problems for the last 15 plus years and attributed MS signs to post polio.
Sue suehemming@gmx.net 45 Female I have had MS for over 20 years. I have a great sense of humour and live in Ibiza, Spain.
Amr A. eltahana@hotmail.com 30 Male I newly diagnosed with MS. I am an Egyptian computer engineer.
Eleanor elenor@wiltonnewyork.com 67 Female I am a retired physical therapist. I was able to continue working part time, teaching, and consulting until I retired at age 60. I am married with two sons. I have Secondary Progressive MS with long frequent relapses. I have many interests and do not stay down, but I'm having difficulty now. Would love an understanding friend.
Nicole W. nicolew1@hotmail.com 26 Female I was diagnosed in July 2001 with Relapsing Remitting MS. I have a wonderful husband and a three year old daughter and live in Canada.
Deb Y. LadyBDeb@aol.com 43 Female I am a single parent of two teens: ages 13 and 15. I was diagnosed with MS three years ago. I continue to work and try not to let too much get me down.
Kathy Kathi1960@aol.com 42 Female I'm a single parent of two: ages 14 and 19. My daughter was diagnosed in June 2001 with Relapsing Remitting MS. I live in Philadelphia and work full time. I would love to have a contact with anyone who wants to share MS stories and related events.
Sue suehemming@gmx.net 45 Female I have had MS 20+ years and in a wheelchair for 9 years. I have lived in Spain for 12 years. I have a great sense of humor and do e-mail others with MS but would like to talk to more.
Elizabeth S. lesmoke@eagle.ca 45 Female My career was in Humanities, however, I no longer work and have two grown children. I like gardening, reading, and writing. I live in the country, and am independant. I like contact with a lot of different people.
Jane D. janedysinger@yahoo.com 53 Female I am a mother of 4 children, an RN, a christian, and now a disabled person due to probable MS.
Twyla Pardue109@aol.com 42 Female Married for 12 years have four children (3 living), ages 23,10,5 and two grandchildren ages 4 and 2. In 1996, I first started having blindness in my left eye and was told to see my doctor because I needed to check for MS. I am not on any disease modifying therapies for fear of needle. I do not work and am highly depressed. Wishing to talk to someone who can tell me how to stop the crazyness and fear.
Donna S. shnbriteeyes@aol.com 59 Female I have had MS for 20 years and in a moterize wheelchair. I am in pain a lot but will not let it get me down. My six kids are all grown and have children so I am on the computer most of the day.
Josette M. cadet@foxinternet.net 43 Female Happy, at peace, uncertain aboout the future with MS
Tracy tdillard38@yahoo.com 39 Female I've been married for 15 years and have a 20 year old son. I was diagnosed with MS 7 weeks ago.
Jean geniec@@eircom.net 36 Female I live in Ireland, am single, and was diagnosed in 1998 with Progressive MS. I use a wheelchair and am pretty much house bound so I love the net.
Stephen N. kevinburnham@optusnet.com.au 34 Male I was diagonosed with MS 7 years ago and have been using Avonex for approximately 6 months. I'm interested in talking to people with MS and helping out in any way pratical.
Stephanie MsWampus@aol.com 42 Female I was diagnosed with MS in March 2002. I'm confused and not getting any answers. My life is filled with wonderful, caring people that just dont get it.
Jill JLH743@aol.com 27 Female I have been having symptoms for a little over 1.5 years and have been poked and prodded so much but still have no diagnosis. I am looking for support and information. I love to chat and email. I live in New York.
Mazie MazieKarnes@msn.com 25 Female Happy, wanting to help people.
Christine wanda55555@aol.com 33 Female I'm married and have a dog named Wanda and 2 cats: Bart and Barney. I have had MS for 7 years. I walk with a walker and need a wheelchair for long distances. I am currently taking Rebif and Copaxone. My favorite thing to do is laugh...I love a good joke.
Cindy cLimp5@aol.com 51 Female I live in Central Indiana and have been married for 29 years. I have three daughters, ages: 28, 23, and 16 and two granddaughters, ages: 8 and 6 months. For pets, I have a labrador retriever and two cats. I miss my job as a secretary. I've been on Copaxone since late September 2002. I would love to talk with anyone about medications and their experiences with MS.
Tiffany K. tkandmik@frontiernet.net 33 Female Previous paralegal for busy attorney. I had to quit due to MS and migraines. Use cane and walker.
Sharon P. Roysharonprather@aol.com 52 Female I was diagnosied in December 1997 with Relapsing Remitting MS. I currently take Copaxone, and it seems to be working. I am a grandmother of two, and I have a wonderful husband who takes very good care of me. I am also a pastor and would like to meet someone else with MS who is pastoring.
Lois T. lthistle@yahoo.com 59 Female I am happy to talk to anyone who is dealing with MS as I am also a caregiver for my husband with Alzheimers.
Claudia E. kevans3407@aol.com 48 Female I am newly diagnosed and have lots of questions.
James L. jv2802@chartermi.net 53 Male I was diagnosed in September 2000 with Relapsing Remitting MS but now have Secondary Progressive MS. I am retired and love chatting with others.
Mazie MazieKarnes@msn.com N/A Female Helping twin sister with MS
Sandra M. sanmil@pagosa.net 46 Female Diagnosed with Relapsing Remitting MS in 1999. Married with two children, ages 21 and 18. Working full time in a Head Start preschool program as a teacher. I really would like to correspond with someone who has some understanding of how I feel. Co-workers don't really ever know how I feel.
Marsha M. marshamatthews45@msn.com 48 Female Diagnosed with Relapsing Remitting MS in May 1999. I experience cognitive impairment, chronic depression already along with OCD. I currently take Copaxone.
Rosemary T. Rosemaryatlee@yahoo.com 58 Female I have had MS for over 20 years and live alone. I use to teach school but retired. My gait is very bad, and I use crutches along with AFO's.
Vicke N. Vicken45@AOL.com 45 Female I am diagnosed with Chronic Imflammatory Demilinating Polyneuropathy and MS. I use a wheelchair and no feeling in legs from hips down. I'm married and do a lot around the house.
Elizabeth C. lizzycotton@37.com 49 Female I have had MS for many years, and I am into the secondary slow progressive phase right now. I am going to college and finding it sometimes difficult to remember things. I would like to talk to others about how they handle their everyday pressures of life.
Michelle K. SweetOceanBlue77@aol.com 41 Female I enjoy helping people and making new friends on the Internet who also have disabilties. I enjoy reading, computers, and music.
Linda lgdooley@yahoo.com 51 Female Diagnosed with MS in October 2001. I am depressed and in lots of pain and numbness. I just moved and need support.
Katie S. katherine.springer@blueshieldca.com 26 Female I am a single mother with two children, ages 4 and 7. I have recently been diagnosed with optic neuritis. I have had symtoms of MS and would like to talk to someone who can help me out with the symtoms I have.
Sherry T. sherrytompkins@earthlink.net 33 Female I am a divorced mother of two and caseworker for children's psychiatric services. I like to bowl, write, and play basketball when I can. I also play the piano and the flute. I love to fish and my kids biggest fan.
Jimmie E. jlmrenoc@ligtel.com 31 Male I was diagnosed with MS in January 2003 and would like to talk to someone with MS to help me and my wife to understand.
Deborah dnh@bellsouth.net 47 Female I was diagnosed with MS in 1999. I have two children. I would love to hear from anyone who has MS.
Melissa E. jlmrenoc@ligtel.com 22 Female My husband was diagnosed with MS, and we would like some E-mail friends.
Deborah K. d_l_kaufman@yahoo.com 46 Female I am single and work at an independent living center as a receptionist/secretary in Kansas. I use a powerchair due to loss of use of my legs. I enjoy life and helping people.
Sandy R. SandyNCerdan@aol.com 50 Female I was diagnosed with MS in August 2000. I would like to learn as much as I can about how other people are coping and dealing with the issues that we all have in common.
Jennifer Tiaradamage@aol.com 29 Female I was recently diagnosed with MS. This is a very confusing time for me, and I would like to exchage e-mail with anyone as I love to talk. I'm married and have a 9 year old and a cat.
Patti demeyer5@mts.net 30 Female I married my high school sweetheart, and we have three boys, ages 5, 3, and 6 months. My husband was diagnosed with MS in 1998. I consider myself a very positive & spiritual person. It's hard to watch someone I love while they struggle to cope day to day and sometimes moment to moment. I need to connect with other caregives.
Danica purplerayne22@yahoo.com 23 Female My mother has had MS since I was born. We only found out about 6 years, and she is now confined to a nursing home bed. I am having a difficult time dealing with this along with my father. I have two girls and a nephew that my mom doesn't get to enjoy like she should. I would like to hear from others that are in the same situation.
Tina C. TinaMColter@aol.com 28 Female I was diagnosed with Relapsing Remitting MS in February 2003. I am seperated and a mom of six children. I would love to chat with anyone with MS. I live in Michigan and especially interested in hearing from anyone using Rebif.
Mary a14ckb@msn.com 48 Female I was diagnosed with MS eight years ago, but I feel like i am getting worse. I would like to talk to someone that feels the same way.
Gina D. ginad62@hotmail.com 40 Female I was diagnosed with MS four years ago, however, I was misdiagnosed seven years ago. I am in the progressive/remitting stage. I began with Betaseron and chemotherapy. I still have difficulties but I was want to help anyone who feels like giving up when there is no hope.
Nina nina63@msn.com 39 Female I am a fun loving single mother and like to garden, read, and exercise. I would like to chat with someone about MS and the kinds of problems that occur.
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